Interviews und Podcasts:

EDS Awareness Podcast with Dr. Linda Bluestein

Ich hatte die Ehre von der EDS-Expertin Dr. Linda Bluestein für einen Podcast der Organisation EDS Awareness interviewt zu werden (Englisch). In diesem Podcast spreche ich über die großen und kleinen Herausforderungen während der Filmproduktion und meine ganz persönlichen Ziele für die Zukunft.

https://www.chronicpainpartners.com/webinar/we-are-visible-podcast/

Video-Interview mit EDS Awareness und Kendra Neilson Myles

Kendra Neilson Myles, CEO und Gesundheitsexperte, interviewte mich für ihre Organisation EDS Wellness. Wir sprechen über die Herausforderungen als EDS-Betroffene einen Film zu machen, über meine Pläne den Film an die Öffentlichkeit zu bringen und vieles mehr.

We Are Visible - Q&A with Karia Sturm about Her Recently Released EDS Documentary

Dieses Video auf YouTube ansehen.
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Q&A mit Practical Pain Management 

Since I was diagnosed with EDS and many related conditions, I have used my passion for writing to raise awareness of neglected communities, such as people living with invisible illnesses. I hated that I often didn’t feel seen or heard and wanted to change this.

Lest das gesamte Interview hier: https://www.practicalpainmanagement.com/patient/conditions/ehlers-danlos/documentary-spotlights-real-struggles-living-chronic-invisible

Q&A Mit ‚Hypermobility Happy Hour‘

Zu Gast im Podcast ‚Hypermobility Happy Hour‘ sprach ich über meinen Film, meine Zukunftspläne und mein Leben mit EDS.

Podcast mit Jason Herterich (Discomfort Zone Podcast)

Discomfort Zone ist ein Podcast zum Thema chronische Schmerzen, Fibromyalgie und Behinderung. Jason sprach mit mir über meine Erfahrung mit EDS, meinen Film und meine Zukunftspläne.

https://invisiblenotbroken.com/discomfortzone/we-are-visible-karina-sturm

Reviews von ’We Are Visible’:

Oh Twist! – EDS-Aktivist und Blogger

Not only was the story telling masterfully handled, weaving her own diagnostic journey into those of her six international subjects, but their stories were so moving and compelling I was sunk. Bring tissues!

Lest den gesamten Review:  http://ohtwist.com/becoming-visible

Jeannie Di Bon – Physiotherapeut spezialisiert auf EDS

But not one of the six participants in the film felt sorry for themselves. Remarkable strength. The film demonstrated resilience, strength and determination – qualities I believe you need to survive in the EDS world. It shouldn’t be a fight, but for many people it is. We Are Visible is going to be a valuable tool to show the world what living with an invisible illness is really like. 

Lest den gesamten Review: https://jeanniedibon.com/wellness/this-film-is-going-to-close-the-gap-on-eds-education/

David-Elijah Nahmod — Journalist und Filmkritiker

It’s a profoundly moving and eye-opening film that will hopefully find an audience outside of the Ehlers-Danlos community. It’s a film that calls for compassion and understanding, and explains in no uncertain terms exactly what Ehlers-Danlos can do to a person’s body.

Lest den gesamten Review: https://belocipriani.com/disability-advocates/life-with-ehlers-danlos-syndrome-chronicled-in-new-documentary/

Patient Worthy

Karina’s love and respect for these people and their stories shine through every frame, letting the viewer in on a world that may have been unfamiliar to us.

Lest den vollen Review: https://patientworthy.com/2020/02/05/we-are-visible-how-karina-turned-advocacy-into-art/

Diversability

Whether you are an ally or an individual with a disability yourself, I do encourage you to screen the film when you have the chance. It is truly a testament to what we, as people with disabilities, experience and overcome on a daily basis.

Lest den ganzen Review hier:https://mydiversability.com/posts?month=04-2020

Press Releases und Blogs:

EDS Wisconsin

Die Organisation EDS Wisconsin veröffentlichte Informationen rund um meinen Film auf deren Blog:

https://edswi.org/ehlers-danlos-documentary-we-are-visible/

EDS Awareness

Auch EDS Awareness verbreitet ’We Are Visible’ mittels ihrer Organisation. 

https://www.chronicpainpartners.com/webinar/new-feature-length-ehlers-danlos-documentary-we-are-visible-october-19-2019/

Fight Like A Warrior

‚We Are Visible‘ didn’t only give a voice to its contributors. It also gave me a voice. It helped me realize that there are so many people with similar experiences to mine. All of their perspectives helped me to become a better person, a better journalist, and they made me feel validated for the very first time. 

Lest den gesamten Post: https://www.fightlikeawarrior.org/post/we-are-visible-a-documentary-about-living-with-an-invisible-illness

EDS Society

 Journalists and filmmaker alike talk about these people but not with them. I wanted to change this, so ’We Are Visible’ directly involved all of its contributors in order to represent this community in an accurate and truthful way

Lest den gesamten Post: https://www.ehlers-danlos.com/we-are-visible/

The Mighty

Slowly, but gradually, I dug myself out of the hole I was hiding in, and with every article I wrote, I felt more alive and more visible. I dedicated my work mainly to medicine and science, but when I officially signed up for a journalism degree in Scotland, it hit me! I realized that not only was I feeling invisible and unheard, many other members of my community must feel just like me. And I needed to actively do something about it!

Lest den vollen Artikel hier: https://themighty.com/2020/02/ehlers-danlos-syndrome-documentary/

Wollt ihr mehr über meinen Film ‚We Are Visible‘ herausfinden?

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