, , ,

We Are Visible – Meet Jojo

Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.


We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo.

Jojo is a mom of five children. She and four of her children have EDS. When she shared a video of her daughter’s bendy joints on YouTube at the end of 2012, she was accused of child abuse (FII) and 12 months of investigation followed. Jojo was cleared of all accusations in 2014, and since then she has been raising awareness for these common issues in the UK. Even though her case was closed and her daughter has been diagnosed with EDS besides other illnesses, Jojo is continuously questioned about FII. 

In this video, Jojo explains how she feels about this never-ending fight to clear her name all over again.

We Are Visible - Meet Jojo
Watch this video on YouTube.
Datenschutz | Privacy

We Are Visible – Coming soon…

If you want to learn more about this film project,

have a look here.

/by
You might also like
A woman with shoulder-long blonde hair sits on a blue exercise mat. She wears black pants and a black tank top and lifts her left arm up to her side. Text: The Zebra Club.Jeannie Di Bon’s Zebra Club App – A Review
A New EDS Clinic Coming to a Town Near You (Via Telehealth)
Dr. Lilian Holm on EDS & Physical Therapy. Dr. Lilian Holm, a woman with shoulder-long brown hair and bangs, is sitting in her office, which is a large room with a turquoise wall behind her and an open fireplace. She sits on a beige chair and wears a black shirt and a delicate golden necklace. In the background is a treatment bench in the foreground two red flowers.EDSed Episode 2: Dr. Lilian Holm on Physical Therapy & EDS
Book Cover Disjointed which shows a break between two lava stones with lave in the middleBooks on Ehlers-Danlos Syndrome
A person with rainbow colored hair that are shaved on the sides. The person wears a black tank top and holds a fluffy white dog.Jules Machias about their EDS journey and new middle-grade book Fight + Flight
Many cells connected by extracellular matrixFolate-Dependent Hypermobility: Researchers at Tulane’s EDS Clinic Look Into New Possible Mechanism For Hypermobile EDS
Winner Certificate: Festigious Winner, September 2019, International Film Festival, Los Angeles, Honorable Mention: Student Film (Feature), presented to: Karina Ulrike Sturm. We Are VisibleWe Are Visible – Film Awards, Competitions, and Festivals
A black and white shot of Jameela, a woman with long black hair who rests her head on her handInterview with The Good Place actress Jameela Jamil
0 replies

Leave a Reply

Want to join the discussion?
Feel free to contribute!

Leave a Reply

Your email address will not be published. Required fields are marked *