Posts

A female doctor with a blue surgical robe and a blue cap holding up a purple stethoscope.
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Mastering Appointments Successfully With EDS

Content: Becoming a Professional Patient: Why is it Necessary? Medical Gaslighting Challenges for Medical Professionals and Consequences in Patient Care  Becoming the Professional Patient Before the Appointment During the…
Caitlin, a woman with long red hair is sitting on a chair in her backyard. The sun is shining. She wears a blue shirt and sits in front of a gigantic orange tree with lots of oranges and green leaves.
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We Are Visible (Too), Episode 2: Caitlin O’Donnell

We Are Visible (Too) is an ongoing mini-film series portraying people with EDS all across the globe. In this mini-documentary series, we will continue on the We Are Visible  – a feature-length film about people with EDS – journey and add…
Karina, a woman with shaved head, is standing in her backyard wearing a black hat, red lip stick and large silver hoop earrings

New Newsletter: The Chronic Pain Partners Post

John, the CEO of EDS Awareness and a dear friend of mine, asked me to send out this new newsletter once a month. It will include useful information about all things EDS: resources, important events, articles and more. I plan to make…
Karina, a woman with super short brown hair is wearing a black hat and has her hand on top of the hat to take it off. She wears huge, feather-like earrings and lipstick.

How it all began: Getting diagnosed with Ehlers-Danlos syndrome

Oh Gosh, I feel like I have told this story too many times, but you are new here, so I might as well share it again. So this is how it all began and the reason why you are here, on my Blog, today. I try to keep it short, though.  Am…