Posts
We Are Visible – Meet Jojo
We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo.
Jojo is a mom of five children.…
Coming soon: Documentary film about the Ehlers-Danlos syndromes
The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body.
We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…
Misdiagnoses – an investigative article
Have you ever wondered if you are the only one who has been misdiagnosed by a medical professional in the past? In fact, you are in good company. Diagnostic errors are a global threat, but rarely do we hear about them. For this article, I interviewed…
Firsts – Episode 1: David-Elijah Nahmod
Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani.
Please enjoy Episode One: David-Elijah Nahmod
Version with closed captions:
https://www.youtube.com/watch?v=oEuDbmmLQN0
Version…
Firsts – The Mini Documentary Series for Belo Cipriani
I had the honor to work with Belo Cipriani, a blind journalist, and advocate for people living with disabilities. Belo recently established a publishing house called Oleb Books whose mission is to represent disability in a respectful and honest…
Positive Care – a short documentary
Positive Care is a short documentary about the lives of previous and current residents at Laguna Honda's Positive Care Unit in San Francisco.
https://www.youtube.com/watch?v=nTEYPmyXH5g&frags=pl%2Cwn
German Podcast: Aches, Pains & Smiles
Aches, Pains & Smiles is journalist Karina Sturm’s German podcast where she speaks with people with varying chronic illnesses and disabilities to raise awareness for our differences but also similarities and to eradicate stereotypes around…
30 doctors have been wrong for 12 years: The medical odyssey of Denise B.
Denise lived with excruciating pain. Her skin was covered in hematomas and no doctor could help her. It was twelve years later, when the surprising diagnosis was revealed, and it came close to salvation.
Early in Denise’s life doctors…