Karina Sturm
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EDS & Co

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Welcome to my website!

Black and white photo of Karina, a woman with 7 mm shaved hair and huge round earrings.

Karina Sturm – journalist, filmmaker, writer, and professional patient

Karina is a multimedia journalist from Germany who used to live in San Francisco. She is a lab technician turned journalist with a focus on chronic illness/disability representation in the media and received her MA with Distinction in international journalism from Edinburgh Napier University in Scotland. She loves Sushi, Heavy Metal, the ocean and dogs!

Would you like to support my work?

Popular
  • Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank Marx
    Coming soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
  • White letters on black background: You are faking it
    We Are Visible – Trailers26. July 2019 - 18:07
  • Karina, a woman with super short brown hair is wearing a black hat and has her hand on top of the hat to take it off. She wears huge, feather-like earrings and lipstick.
    How it all began: Getting diagnosed with Ehlers-Danlos ...13. March 2021 - 22:50
  • Black and white photo of Karina, a woman with 7 mm shaved hair and huge round earrings.
    Let’s get real. This is how 2020 really was for me.18. March 2021 - 23:55
Recent
  • A golden book cover: Fourth Wing
    How Rebecca Yarros’ “Fourth Wing” Embodies Ehlers-Danlos...24. December 2024 - 12:48
  • Logo Props No More, which is a purple microphone and text: Disabled Creators Tearing Down Media Barriere
    Props No More: Redefining the Scene: Beyond Representation...27. October 2024 - 22:17
  • A close-up of a woman wearing headphones and speaking into a microphone. She has light brown, shoulder-length hair with blonde highlights. She looks forward with focus as she speaks into a black, professional studio microphone attached to a flexible arm. The background is blurred and neutral.
    Proud Stutter12. October 2024 - 3:10
  • a hand with purple gloves in a lab with a pipette
    Norris Lab Finds HEDS Gene: Kallikrein12. June 2024 - 11:25
Comments
  • Hi Rebecca, thanks for the kind words. I certainly can relate...9. September 2024 - 15:28 by karinabutterfly
  • Karina, this was beautifully said. As I write this comment,...8. July 2024 - 1:02 by Rebecca Simone Schmitz
  • Hi Molly, I hope you enjoy it. Let me know what you think....31. July 2021 - 13:25 by karinabutterfly
  • Hi Molly, I am so sorry for your loss. :( Sending you gentle...31. July 2021 - 13:25 by karinabutterfly
Tags
advocate Anxiety Awareness Belo Cipriani Chronic illness Chronic pain Complicated Connective Tissue Disorder Coping Disability Disability Film Disabled Journalist documentary documentary film EDS Clinic Ehlers-Danlos syndrome Featured Filmmaker film release Folate Genetic condition hEDS heds Gene Hypermobility Ian Harding International Interviews Invisible Disability Invisible illness MCAS Medical article Misdiagnosis MTHFR Newsletter Norris Lab nursing home Podcast PTSD Rare Disease Review San Francisco/Bay Area Science Stories of chronically ill Tulane University USA

Watch my latest short doc: Lego Oma

My short doc about the German Lego Oma, who builds wheelchair ramps from Lego to raise awareness for the (in)accessibility in Germany, is now available for a small fee on Vimeo on Demand. All income goes directly to Chronic Pain Partners, a non-profit organization.

VIMEO ON DEMAND

Chronic Pain Partners Post (EDS Newsletter) – In collaboration with EDS Awareness

A portrait shot of Karina, a woman with short, 10 mm shaved, brown hair and huge, feather-like earrings sits in her kitchen.

The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward
 

– Karina Sturm – 
Journalist, Writer, Advocate
 

Chronic Illness & Disability 
 

Copyright - Karina Sturm - Enfold Theme by Kriesi
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